Re: barking up the wrong tree

[rayilynlee <rayilynlee@xxxxxxx>]

and I so far have never had the freezing experience, just very slow motion.
Rayilyn Brown
Board Member AZNPF
Arizona Chapter National Parkinson's Foundation
rbrown@xxxxxxxxx
----- Original Message -----
From: "Amanda Phillips" <Ajphill@xxxxxxx>
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Sent: Friday, June 22, 2007 5:02 PM
Subject: Re: barking up the wrong tree


> In a message dated 22/06/2007 07:02:32 GMT Standard Time,
> rayilynlee@xxxxxxx
> writes:
>
> Amanda,  I used to shake more when involved in music...singing or playing
> the
> piano.  Weird,  just the opposite from you...wonder  why.
> Ray
> Rayilyn Brown
> Board Member AZNPF
> Arizona Chapter National  Parkinson's Foundation
> rbrown@xxxxxxxxx
> ----- Original Message  -----
> From: "Amanda Phillips" <Ajphill@xxxxxxx>
> To:  <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
> Sent: Wednesday, June 20, 2007 3:37  PM
> Subject: Re: barking up the wrong tree
>
>
> > In a message  dated 20/06/2007 07:01:44 GMT Standard Time,
> >  rayilynlee@xxxxxxx
> > writes:
> >
> > Steve
> >
> > I  have  long failed to understand the role of  dopamine in PD but then
> > my
> > education has been in the social, not  biological,  sciences.
> >
> > I ask:
> >
> > How do they know I'm  lacking  dopamine when there is no blood test to
> > measure
> >  how much I have? (and   I don't want to wait til I die to find  out)
> >
> > Why if lack of dopamine  caused my tremors do leads  in my brain that
> > constantly transmit electric  impulses from  neurotransmittters in my
> > chest
> > stop them?  And how   was  DBS able to immediately straighten out my
> > dystonic
> >  foot?   Since DBS 4 ago years I've kind of plateaued except for my
> > voice.
> >
> > I  don't think the disease process is understood  at all, even  though
> > they
> > say it is, but then what do I  know?
> >
> > And I don't buy that   you've lost 80%   of your dopamine before you
> > become
> > symptomatic.   If lack  of  it is the cause, how do you function so long
> > without  the  right  amount whatever that might be?
> >
> > Why do PD  meds affect people  so differently?  A few years ago Edith
> > Love
> > and
> > Mario attempted to  develop a  data base to  share info.  We need
> > something
> > at
> > least   nationally.
> >
> > Ray
> >
> > Rayilyn Brown
> > Board  Member AZNPF
> > Arizona  Chapter National Parkinson's  Foundation
> > rbrown@xxxxxxxxx
> > ----- Original  Message  -----
> > From: "Steve Rack" <srack@xxxxxxxxx>
> > To:   <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
> > Sent: Monday, June 18, 2007  8:31  PM
> > Subject: barking up the wrong  tree
> >
> >
> > > Ray I'm going to go  out on a scary limb  here. Dopamine is a
> > > neuro-transmitter, one of many   identified in our brain. Highly
> > > specialized chemicals these -  each  with a specific task - except (it
> > > seems) dopamine.  Dopamine is the  transmitter of mood and movement. Or
> > > is it?  I don't know of another  dual purpose neuro-transmitter. Do
> > >  you? Perhaps there's a fundamental  reason that sinemet and  the
> > > agonist drugs give us strange side effects  before losing  what
> > > effectiveness they had and failing entirely. Have  our  researchers
> > > been barking up the wrong tree?
> > >  --
> > >  Steve Rack
> > >
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> >
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> >
> >
> > Why do I stop  shaking when really absorbed in playing music ?  There
> >  isn't
> > much time for brain chemistry to change - the doctors just said  'you
> > must
> > be
> > mistaken -no\I'm not.
> >
> > How come  only humans get pd ?   A matter of intelligence ?   if so,
> > what
> > role
> > exactly does intelligence play in developing PD  ?
> >
> >
> >
> >
> >
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>
>
> Concentration ?  I love music but have no talent so must use obstinacy
> instead, or maybe it's just different brain configurations.
> Like you I'm not convinced about dopamine, 'cos I don't see how it
> accounts
> for the variations - and what's with the freezing in doorways ( a bloke in
> my
> local support group can't go through glass doors) or forgetting how to  go
> from kneel to stand ?
> The doctors probably can't measure it before or after  death.
>
>
>
>
>
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