PIENO History and Navigation Help

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Pieno History & Navigation Help Match All Any Keywords [ All Parkinsons Organizations ] 1993 Parkinsn Messages 1994 Parkinsn Messages 1995 apr-jun Parkinsn Messages 1995 jan-mar Parkinsn Messages 1995 jul-sep Parkinsn Messages 1995 oct-dec Parkinsn Messages 1996 apr-jun Parkinsn Messages 1996 jan-mar Parkinsn Messages 1996 jul-sep Parkinsn Messages 1996 oct-dec Parkinsn Messages 1997 apr-jun Parkinsn Messages 1997 jan-mar Parkinsn Messages 1997 jul-sep Parkinsn Messages 1997 oct-dec Parkinsn Messages 1998 apr-jun Parkinsn Messages 1998 jan-mar Parkinsn Messages 1998 jul-sep Parkinsn Messages 1998 oct-dec Parkinsn Messages 1999 apr-jun Parkinsn Messages 1999 jan-mar Parkinsn Messages 1999 jul-sep Parkinsn Messages 1999 oct-dec Parkinsn Messages 2000 jan-mar Parkinsn Messages 2000 jul-sep Parkinsn Messages 2000 mar-jun Parkinsn Messages 2000 oct-dec Parkinsn Messages 2001 apr-jun Parkinsn Messages 2001 jan-mar Parkinsn Messages 2001 jul-sep Parkinsn Messages 2001 oct-dec Parkinsn Messages 2002 apr-jun Parkinsn Messages 2002 jan-mar Parkinsn Messages 2002 jul-sep Parkinsn Messages 2002 oct-dec Parkinsn Messages 2003 apr-jun Parkinsn Messages 2003 jan-mar Parkinsn Messages 2003 jul-sep Parkinsn Messages 2003 oct-dec Parkinsn Messages 2004 apr-jun Parkinsn Messages 2004 jan-mar Parkinsn Messages 2004 jul-sep Parkinsn Messages 2004 oct-dec Parkinsn Messages DBS-STN Support MD Virtual University Michael J Fox Foundation National Parkinson Foundation Northwest Parkinsons Foundation Parkinsn Drug Database Parkinsn Resources Archive Parkinson Disease Foundation The Parkinson Alliance The Unity Walk Unity Walk We Move Keywords:

Site Hosting donated by & Grant from The Parkinson Alliance

1. Welcome to the PIENO Parkinsn website. Parkinsn without the o is the official name of the Parkinsn Email list. Listservs in the early 90s only allowed 8 characters in the listname so Parkinsn without the o was born.

Those of you that were directed to our pages from search engines, may not know that Parkinsn is an email list founded in 1993 by Barbara Patterson, who has parkinsons.

At that time the internet was just a few universities connected around the world and the means to communicate with peers was through the listserv. If one was searching for information you would find information about information but not the meat in the sandwich.

I joined Parkinsn a month later looking for information about my condition. I became the Parkinsn list's listserv expert.

Barbara and I recognised early on that access to the email archive was important for newly diagnosed and older patients. We had so many menbers with limited computer and especially Listserv skills that retrieving messages was impossible. One had to be a programmer in order to extract email messages from the listserv.

About six years ago, Barbara and I came to a conclusion that a website about Parkinsn was an idea overdue. Barbara chose parkinsons information exchange network online as the official name of the website. Since that is quite long P-I-E-N-O is the short hand of it and you will see the website referred to as PEENO like BEANO.

2. The box that appears on your screen is the PIENO navigation box.

Three years ago Healthology.com approached us to join them as an affiliate for their multimedia library that included topics from allergies to workplace health.

To try the multimedia out, find the box on the page that says, "Pick a Condition Here" and click on it. A scrollable list appears that you can select a topic by clicking on it.

3. Along the left hand side of the screen are links to the home page of PIENO, the Current Topics page that lists the articles and studies about neurological disorders and medications.

The third link is the Drug Database Index. If you arrived from a search engine looking for information on one of the drugs in the database you bypassed the page that has all of the drugs that may interfere with Parkinsons.

4. On the top right hand of the screen are multimedia topics of the day. If you run your mouse over them, the cursor changes to a hand. This means if you click on one of the pictures it will send you to a page that will have videos and transcripts on that particular topic. The second picture from the top of two horizontal lovers in an embrace when clicked on starts a video about Sex and Yeast Infection. Provocative eh?

The disclaimer link is simply to advise visitors that I am not a doctor, the Parkinsn volunteers that put this drug database information together are not medical professions and the information is for educational purposes only. If you look at several drug definitions the disclaimer will pop up. This is not to annoy but to inform those who come directly to that page from a search engine.

5. The Parkinsn list had the good fortune last November to receive sponsorship from Hurricane Electric which provides a place for our webpages and the Parkinson Alliance with provides us with the tools to do what we do.

For several years, the Parkinsn archives were in limbo and not accessible to those without extensive programming skills. It was the dream of our founder, Barbara Patterson and myself to be able to present the 11 years of Parkinsn email messages to those in the same condition and make them searchable. Our partners, Hurricane Electric and The Parkinson Alliance have made our dream possible.

6. You can search or browse the 11 years of Parkinsn email messages. To browse the messages click on the underlined year. This will take you to a matrix page. The messages are filed in 500 message file cabinets with each X representing one of those file cabinets. Since Parkinsn messages are sorted with the newest message on top, the last X in the column is the first messages received for that group of months. jan-mar apr-jun jul-sep oct-dec etc. A simplier way to find what you are looking for instead of browsing 120,000 messages in the archives, is to use the PIENO search box that you will find on the 130,000 PIENO pages. PIENO is the largest Parkinson's website in the world.

7. Getting back to dream of Barbara and I, we invisioned the ability not only to search all of PIENO but the websites of the whole medical world from one searchbox.

Why not just rely on Google or Yahoo?

Commercial search engines are constantly searching the world and those pages who no one ever goes to are dropped from the search and replace them with newer ones. Most people select from the first 10 URLs and if the information you are interested in is on page 110 most people will never find the "needle in the hay stack".

The PIENO search engine revisits the world's most content rich Parkinson's sites and the Library of Medicine and We Move weekly so that the content you are searching for is fresh and free of the Viagra pages that trick the search engines into thinking they are about Parkinsons.

Like the Healthology videos that cover scores of topics, the PIENO Search engine indexes information about all medical conditions. We are all complex and our mix of conditions makes us similar and different.

Here are some search Tips to make your searches more fruitful

1. Think of what condition or subject you want to search and put that word first on the keywords line and the next specific thing you are looking for. The more words that apply to the topic of the search the more focused the results will be. Instead of 170,000 documents returned really only 3 or 4 contain answers you are looking for.

You might not find a match, then reduce the number of key words and try again until you find the document you are looking for.

Words on the keyword line could match one word if ANY is selected on the search box or if ALL is selected, all of the words must match.

Returned documents may have the words in a checkerboard arrangement in the document and not really what you are looking for. In those cases think of key word pairs, like "side effects" enclosed in double quotes. In the case those documents may have forgotten the space between side and effects, if you use side*effects for one key word substituting the asterisk (shift 8), it will find all instances of those two words regardless of a hyphen or space or no space between them.

All search engine keyword boxes support drag and drop. What that means is if you find an interesting word or phrase you can highlight it by going to the first of the word or phrase and holding the mouse button down as you drag to the right. Release the mouse button and select the highlighted word or phrase by holding down the mouse button again and drag it to the search box. The enter key or clicking on the search button will find what you are looking for.

The PIENO search box allows the user to select which organization or collection to search. Generally this is just used by webmasters from other indexed sites to verify through searches which pages are indexed by PIENO. Clicking on All Parkinsons Organization gives a list of sites and collections contained in the PIENO search.

The PIENO Results Page

The results page looks similar to any other search engine. When you click on a page title you are taken to that page where ever. The use of the keywords in context are also displayed in the description. PIENO has an additional option below each return, View with Keywords Highlighted in text. If you click that, each of your search keywords will be highlighted to allow you to scan the document and see if it meets your needs.

Finale!

Thank you for visiting our pages, but if something doesn't work, check to see if Macromedia Flash, Java and RealPlayer are installed on your computer. PIENO makes use of all of these.

XP users should be aware that XP does not support Java right out of the box and the functionality may be lost on some PIENO pages.

Download Java at http://www.java.com/en/download/download_the_latest.jsp or
http://www.java.com/en/download/manual.jsp

Download the FREE flash player at http://www.macromedia.com
or http://tinyurl.com/3tuy

and the FREE RealPlayer at http://www.real.com
or http://tinyurl.com/6a85a