Re: National Database/Dee

[rayilynlee <rayilynlee@xxxxxxx>]

Hi Tess

How is your Mom doing?
Ray
----- Original Message -----
From: "tess owens" <tessowens@xxxxxxxxx>
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Sent: Friday, April 29, 2005 5:02 AM
Subject: Re: National Database/Dee


> hi ray
>
> tess
>
> rayilynlee <rayilynlee@xxxxxxx> wrote:
> Hi Dee
>
> yes the Barrow people were very disappointing to say the least, although I
> never did meet Dr. Shill. It's probably all for the best though. The
> people at AZ Medical Clinic surprised me by being very friendly and
> accommodating. When I commented on it to them, one gal said that the
> people
> at Barrow are "tight-assed, rude and snobbish." AZ Medical Clinic is only
> 7
> miles from home and I can drive it. Proximity to home is really important
> and if I have to have brain surgery again I suppose I could always go to
> the
> Barrow. Their PD survey data base left much to be desired.
> Ray
> ----- Original Message -----
> From: "Dolores Buente"
> To:
>
> Sent: Wednesday, April 27, 2005 3:55 AM
> Subject: Re: National Database/Dee
>
>
> > Hi Ray,
> >
> > I'm sorry to hear that you've had problems finding the doctors you need
> > there
> > in Arizona. I can imagine how disappointed you were that Dr. Stacey left
> > Barrows to go to Vanderbilt. It was not very endearing of the people
> > there at
> > Barrow's to drop you like a "hot potatoe" when you weren't able to make
> > your
> > appointment... these are the "experts" who should know, more than anyone,
> > the
> > limitations that Parkinson's puts on one's life.
> >
> > It's a shame to have to wait 4 months for an appointment with ANY doctor
> > (
> > sounds like what they complain about when they have a national health
> > plan
> > like
> > Canada's) but I hope it is worth the wait and that you have a good
> > relationship with Dr. Pagano
> >
> > Yes, I was a bit disappointed with the Barrow's database. I was expecting
> > it
> > to be focused on gathering background information that, when pulled
> > together,
> > might shed some light on the cause of PD. Well, maybe the California
> > program
> > is geared in that direction. Let's hope!
> >
> > Dee
> >
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