Re: Ozzy Osbourne & PD/Claudia

[rayilynlee <rayilynlee@xxxxxxx>]

Claudia, I for one am interested in your condition.    You deserve to
complain as much as you like. It is just another reminder that PD is not the
only disease one can get.  I know when I survived cancer I thought I was
'home free"  Ha! Ray, wondering when the next shoe will drop.
----- Original Message -----
From: "Claudia J. Goldberg" <cjgoldberg@xxxxxxxxxxx>
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Sent: Monday, July 25, 2005 4:16 AM
Subject: Re: Ozzy Osbourne & PD


> For what it is worth, I once had a neuro-surgeon tell me hat M. Ali did
> not
> have PD, but rather he had a disease called Shy Drager's Disease and ir
> was
> indeed caused by too many blows to the head. Although I got the impression
> that other's can get it without having had all the blows.  In fact, for a
> brief time they thought I had it.  One of the diagnostic symptoms is an
> extreme drop in blood pressure, especially when first standing up.  I do
> have PD but the symptoms of Shy Drager turned out to be caused by another
> disease I had but had not yet been diagnosed.  It was sarcoidosis.  It's a
> fairly rare auto immune disease that nearly always impacts the lungs then
> can go to any organ in the body.  For some they have one episode and then
> it
> never returns.  For others it is either intermitent or chronic.  The
> sarcoidosis was attacking my bone marrow and filling the space with small
> tumors (granulomas) thus leaving no room for me to produce new red blood
> cells.  That caused the extreme low BP and also serious anemia requiring
> blood transfusions.  It is always hard for me to know if any new symptom I
> have is PD related or the sarcoid rearing it's ugly head.  The sarcoid
> also
> precludes me from participating in clinical trials.  They don't want you
> if
> you have more than one disease.
>
> I'm sure this is much more info on sarcoidosis that any of you are
> interested in, but it's one of those sleepless nights and I allowed myself
> to blabber on about a subject not related to PD.  Sorry, I'll try to have
> more self control in the future.
>
> I wish you all peace of mind, the serenity to accept your condition and
> the
> ability to laugh at the arrows life shoots at us.
>
> In the laugh area, a while back there was a country singer who had a song
> called "What Really Turns Me On is the Shake".  I always thought that
> should
> be the PD Anthem!
>
> Claudia
> ----- Original Message -----
> From: "M.Schild" <mmoo@xxxxxxxxxxxxxxxx>
> To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
> Sent: Sunday, July 24, 2005 11:31 PM
> Subject: Re: Ozzy Osbourne & PD
>
>
> > > Also, what about Muhammad Ali's too many blows
> > > to the head?
> >
> >
> > I should think. M. Ali has traumatic parkinsonism.
> > Rotenone is used to induce PD in mice
> > Maryse
> >
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