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Re: Scientific Method etc

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Count me in.  I'm a pretty good editor.  I'm always finding typo's in
the paper, and I have a knack for spotting bad questions in surveys
and tests.  And I obviously love talking about myself ;-)

Enjoy Fall!
Rick McGirr
Email: rickmcgirr@xxxxxxxxxxxx

----- Original Message -----
From: "Steve Rack" <srack@xxxxxxxxx>
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Sent: Wednesday, November 02, 2005 10:25 PM
Subject: Re: Scientific Method etc


>Dee,

Several years ago I both strongly urged the group to establish a database and designed an in depth questionnaire. I was dissapointed by the response, i.e. very few. The comments ranged from 'too complex', 'invasion of privacy', 'too late for me, why bother'.The questionnaire was severely cut and eventually circulated. The management of this was done by Edith and Mario. I did not take part because the data being collected would not have, in my opinion, produced any meaningful results.

I don't think my original questionnaire was too complex, i.e. too
many
questions. In fact, I think more could be added.


... deleted for brevity

I still believe that this group, the largest in the world, could
produce
some very interesting analysis/results. One key point, it should be
completed without the involvement of any Drug company, or any
Research
Department that is receiving any funding from a Drug company.

Marco

I'd be happy to participate. I can well imagine a questionnaire getting very long, we have such varied symptoms and histories. But as a former programmer I don't see where it would be terribly complex, at least not for the users. If we could get a hundred thousand participants the shear numbers could produce linkages that no one has been able to notice. I'd like to see some funding for projects that don't involve pharmaceuticals. Are you listening APDA?

Steve
--
Stephen Rack
Brattleboro, VT

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