Re: barking up the wrong tree

[rayilynlee <rayilynlee@xxxxxxx>]

Amanda, I used to shake more when involved in music...singing or playing the
piano.  Weird,  just the opposite from you...wonder why.
Ray
Rayilyn Brown
Board Member AZNPF
Arizona Chapter National Parkinson's Foundation
rbrown@xxxxxxxxx
----- Original Message -----
From: "Amanda Phillips" <Ajphill@xxxxxxx>
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Sent: Wednesday, June 20, 2007 3:37 PM
Subject: Re: barking up the wrong tree


> In a message dated 20/06/2007 07:01:44 GMT Standard Time,
> rayilynlee@xxxxxxx
> writes:
>
> Steve
>
> I have  long failed to understand the role of  dopamine in PD but then my
> education has been in the social, not  biological, sciences.
>
> I ask:
>
> How do they know I'm lacking  dopamine when there is no blood test to
> measure
> how much I have? (and   I don't want to wait til I die to find out)
>
> Why if lack of dopamine  caused my tremors do leads in my brain that
> constantly transmit electric  impulses from neurotransmittters in my chest
> stop them?  And how  was  DBS able to immediately straighten out my
> dystonic
> foot?   Since DBS 4 ago years I've kind of plateaued except for my voice.
>
> I  don't think the disease process is understood at all, even  though
> they
> say it is, but then what do I know?
>
> And I don't buy that   you've lost 80%  of your dopamine before you become
> symptomatic.   If lack of  it is the cause, how do you function so long
> without the  right  amount whatever that might be?
>
> Why do PD meds affect people  so differently?  A few years ago Edith Love
> and
> Mario attempted to  develop a  data base to share info.  We need something
> at
> least  nationally.
>
> Ray
>
> Rayilyn Brown
> Board Member AZNPF
> Arizona  Chapter National Parkinson's Foundation
> rbrown@xxxxxxxxx
> ----- Original  Message -----
> From: "Steve Rack" <srack@xxxxxxxxx>
> To:  <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
> Sent: Monday, June 18, 2007 8:31  PM
> Subject: barking up the wrong tree
>
>
> > Ray I'm going to go  out on a scary limb here. Dopamine is a
> > neuro-transmitter, one of many  identified in our brain. Highly
> > specialized chemicals these - each  with a specific task - except (it
> > seems) dopamine. Dopamine is the  transmitter of mood and movement. Or
> > is it? I don't know of another  dual purpose neuro-transmitter. Do
> > you? Perhaps there's a fundamental  reason that sinemet and the
> > agonist drugs give us strange side effects  before losing what
> > effectiveness they had and failing entirely. Have  our researchers
> > been barking up the wrong tree?
> > --
> >  Steve Rack
> >
> >  ----------------------------------------------------------------------
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> > Brattleboro  VT
>
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>
>
> Why do I stop shaking when really absorbed in playing music ?  There
> isn't
> much time for brain chemistry to change - the doctors just said 'you must
> be
> mistaken -no\I'm not.
>
> How come only humans get pd ?   A matter of intelligence ?   if so, what
> role
> exactly does intelligence play in developing PD ?
>
>
>
>
>
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