Re: Levesque responds re Phase II

[rayilynlee <rayilynlee@xxxxxxx>]

Dear Dr. Levesque:

Thank you so much for taking the time to respond to us.

I'm still wondering why poor Mr. Turner doesn't/can't get the 2nd treatment
he has so often expressed a desire for.  Did you know, he is still being
touted as a PD "cure" in articles and letters?  Just yesterday the Pasadena
Star printed a  letter that claimed 70 cures from ASCs.  Does his DBS
disqualifiy him?  I read somewhere it did and I had two DBSs.

The anti-science policy of this administration is certainly bad for stem
cell researchers.  The Executive Order that accompanied Bush's most recent
veto and urged the NIH to pursue non-embryonic stem cell research contained
no money.  Scotland recently lauded our stem cell stall as a plus for their
country, but lamented the loss of leadership our country could have
provided.  As a consequence, we who suffer should look to Israel, Singapore
or the UK for hope.

Good luck, Dr. Levesque and thank you for the good work you do.  Updates
are, of course, always most welcome.

Rayilyn Brown
Board Member AZNPF
Arizona Chapter National Parkinson's Foundation
rbrown@xxxxxxxxx
----- Original Message -----
From: "NeuroGeneration" <levesque@xxxxxxxxxxxxxxxxxxx>
To: "rayilynlee" <rayilynlee@xxxxxxx>
Cc: "Peggy Willocks" <dwillocks@xxxxxxxxxxx>; "Linda J Herman"
<ljherman1@xxxxxxxx>; "Nina P. Brown" <nina@xxxxxxxxxxx>; "Joan Snyder"
<snyder201@xxxxxxxxx>; "Yvonne Perry" <vonneperry@xxxxxxxxxxx>;
<meg@xxxxxxxxxxxxxxxxxxxxxx>; "Don C. Reed" <diverdonreed@xxxxxxxxxxx>;
"Diane Wyshak" <dianewyshak@xxxxxxxxx>; "Sean Tipton" <stipton@xxxxxxxxxxx>;
"idelle" <idelle@xxxxxxxxxxxxxxxxxx>; "Claire Salamon" <csalamon@xxxxxxxxx>
Sent: Monday, June 25, 2007 12:32 PM
Subject: Re: Phase II/Turner/etc.


> Dear Rayilyn and friends,
> This is to give you and update on our research using
> autologous neural stem cells for Parkinson's disease.
> Our Phase II Clinical trial remains on hold. It will
> resume  when we complete the funding to upgrade and
> operate cGMP (Good Manufacturing Practice)
> laboratories. We need at least $10M before we can
> proceed. We currently have $5M committed. We hope to
> close this funding in the next 3 months.
>
> From the political standpoint, all research avenues
> are essential to find potential treatments and better
> understanding of degenerative neurological disorders.
> The politisation of science is bad and distract from
> real issues. I refer you to my statement to US Senate
> subcommittee  in 2004.
> As for your last question, I do not know Dr Rogers and
> , after looking at his website, don't think he is
> involved in the type of work we're doing.
>
> I will be glad to keep you updated when we get
> positive news from our study.
>
> Sincerely yours,
>
> Michel Levesque, M.D.
> --- rayilynlee <rayilynlee@xxxxxxx> wrote:
>
> > Dear Dr. Levesque:
> >
> > We in the Parkinson's community are very interested
> > in your research.
> >
> > Has your Phase II ever been resumed?  You emailed me
> > about six months ago that it would be in 6-7 months.
> >
> > Why has Dennis Turner never had a repeat of your
> > original treatment, as he has so often expressed a
> > desire to have it done again?
> > I had two DBS surgeries four years ago and tend to
> > think Turner's situation may somehow be DBS-related
> > since he had one with his original treatment.  I
> > cannot understand, however, why anyone would not be
> > turned on after enduring such a literally
> > hair-raising ordeal.  Programming is the easy part
> > and DBS does yield some good results.
> >
> > A Dr. Joe  Rogers, President of Sun Health Institute
> > here in Arizona is doing research that sounds
> > similar to yours, but  he seems unaware of  what you
> > have done.  Can you tell me anything about his work?
> >
> > I am especially interested in these questions
> > because I help write the newsletter for the Arizona
> > Chapter of the NPF and would very much appreciate
> > any information you could provide so I can keep our
> > membership informed.
> >
> > Thank you.
> >
> > Rayilyn Brown
> > Board Member AZNPF
> > Arizona Chapter National Parkinson's Foundation
> > rbrown@xxxxxxxxx

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