Re: Michael J. Fox Foundation Joins Effort to Recruit 10,000 People with P arkinson's Disease to New Web-based PD Research Community

[Kristin Woestehoff <kgwoestehoff@xxxxxxxxx>]

I signed up to do this. I am curious as to the genetics esp since both me and my mom have PD...what does that mean to my siblings and offspring?--or perhapsÂMom andÂand IÂwere just exposed to the same toxin when I lived at home?...anyway, I think you just provide a saliva sample, so it should be easy! And anything that might help PD research is a good thing! Kristin




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From: "ljherman1@xxxxxxxx" <ljherman1@xxxxxxxx>
To: PARKINSN@xxxxxxxxxxxxxxxxxxxxx
Sent: Saturday, March 28, 2009 2:51:34 AM
Subject: Michael J. Fox Foundation Joins Effort to Recruit 10,000 People with P arkinson's Disease to New Web-based PD Research Community

NOTE: the deadline has been chnaged to April 1 st. There is still time to participate in this unique and important research project . to register go to :Â http://michaeljfox.org/23andme.cfm
Michael J. Fox Foundation Joins Effort to Recruit 10,000 People with Parkinson's Disease to New Web-based PD Research Community
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The Michael J. Fox Foundation for Parkinsonâs Research, together with personal genetics company 23andMe of Mountain View, California, and The Parkinsonâs Institute and Clinical Center of Sunnyvale, California, announced a call for 10,000 people with Parkinsonâs disease to join an ambitious new research community. The goal of the community is to empower individuals with PD to proactively impact research in real time, potentially helping to speed early-stage scientific discoveries toward practical therapeutic relevance in treating Parkinsonâs disease. 

The 23andMe Parkinsonâs Disease Community, conceived and led by 23andMe, is a novel attempt to leverage DNA technology, the Internet, and patient participation to enhance scientific understanding of Parkinsonâs disease and the fieldâs ability to develop breakthrough treatments. 

âExploring the potential of a Web-based approach to patient engagement for research purposes is well-aligned with our Foundationâs mission,â said Katie Hood, CEO of The Michael J. Fox Foundation. 

For the past year, the Foundation has been funding a partnership between 23andMe and the Parkinsonâs Institute and Clinical Center to develop Web-based tools and surveys to gather information from a community of PD patients in a scientifically meaningful way. That project is still in development. In the interest of ensuring that the surveys can be put to immediate use once they are ready, 23andMe and the Parkinsonâs Institute are now formally beginning the work of building the community. 

To accelerate this communityâs growth, through March 22, 23andMe is sponsoring up to 10,000 people with Parkinsonâs to join the community for $25 instead of the usual $399. To be eligible for this discounted rate, individuals must have been diagnosed with Parkinsonâs by a physician, be willing to provide a saliva sample for genetic analysis, and agree to participate in online surveys about their experience with Parkinsonâs. Participantsâ data will be kept anonymous, but will contribute to a larger pool of data about the PD community that will inform various Parkinsonâs research efforts over time.

In addition, members will have full access to the 23andMe Personal Genome Serviceâ, which includes detailed, personalized reports across many health conditions and traits, including PD. They will also have the opportunity to share their experiences directly with others in the 23andMe community who have Parkinsonâs or who carry genetic markers placing them at increased risk for developing the disease.
Read a letter from Katie Hood, MJFF CEO, on this project If you are a person with Parkinson's, learn more about how to obtain a limited-time discount code Learn more at the 23andMe Web site 

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