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Re: I can speak for myself, if you'll let me do so



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Grant from The Parkinson Alliance


Same problem here - the words seem tp sputter out in stops and starts. Often I 
find iit too diifficult to get it out, so i say nothing (how we become 
invisible) . Also find I can't remember certain words as I am talking. Speech 
therapy for PWP has focussed mainly on speaking loud. Wonder if there's any 
tyhpe of therapy for fluency problems?
linda

---------- Original Message ----------
From: rayilynlee <rayilynlee@xxxxxxx>
To: PARKINSN@xxxxxxxxxxxxxxxxxxxx
Subject: Re: I can speak for myself, if you'll let me do so
Date: Sat, 6 Jun 2009 14:25:01 -0700

Interesting article.  The       only     way    I    can    get    words 
out    is    to   do    the    computer     type    delivery and it is not 
that my brain is slow,  I just strangle when I try to speak.  It is awful 
when you can't write either.  People think I am angry when I raise my voice 
to get the words out.  They just don't and can't understand.

For me this turned out to be a much greater problem than I ever  imagined.

Ray

Rayilyn Brown
Director AZNPF
Arizona Chapter National Parkinson Foundation
rbrown@xxxxxxxxx

--------------------------------------------------
From: "ljherman1@xxxxxxxx" <ljherman1@xxxxxxxx>
Sent: Friday, June 05, 2009 6:22 PM
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Subject: I can speak for myself, if you'll let me do so

> There was a great op/ed in the Washington Post last week by Jackie 
> Christensen about the difficulties of communicating for PWP. It was so 
> honest and relevant on a number of levels.  SEE:
> I Can Speak for Myself, If You'll Let Me Do So
> By Jackie Christensen    The Washington Post Tuesday, June 2, 2009
> http://www.washingtonpost.com/wp-dyn/content/article/2009/06/01/AR2009060102835.html
>
>
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