Re: Introduction

[Shekhar Nagarkar <snagarkar@xxxxxxx>]

Hello Tom , 

 

Its good to hear about   your   news about the success of your DBS. I have been 
wondering if I should go for DBS? My Consultant Neuro in Manchester UK, does 
not think I should. I am not sure. I was diagnosed in 1998 although I had 
symptoms of PD which were not recognised. I kept it  a secret whilst I looked 
up what could make my left leg drag and my left arm disobey my command to type 
qwaz my little finger would take a long time to respond.The diagnosis of PD was 
a complete surprise. I am keen to know how other people such as your self have 
managed their fight against PD. I would like to exchange experiences. I have 
found my own ways of improving my Life and it seems to work for the time being 
its not A1 quality of life but it is many times better after 11 + years than i 
had imagined. I seem to be able to continue with a fairly normal ( often very 
good) life with the proper management of diet, exercise, and some specially 
designed equipment which helps to keep me mobile and active. But I am not sure 
if I am taking too much medication. I am also not sure where i go from here as 
the disease or the medication is attacking my normalcy relentlesly. I am on 
Stalevo, Perolide,Amantadine, plus others for eg for sleep and Blood pressure 
and statins


I am 61, my wife keeps telling me I am much better than i was 5  years ago. In 
some  ways I am as I continue to find new ways of coping with my condition. I 
would love to have a chat or hear from any members of the list who want to 
share ideas and experiences. I am a lurker on this list - have been for over 
10years but now i feel i would like to communicate with fellow sufferers and 
learn how i manage  the  next phase. I look forward to hearing from you and 
anyone else.  


Shekhar Nagarkar 

 
> Date: Sat, 6 Jun 2009 08:59:42 -0500
> From: thomasclift@xxxxxxxxx
> Subject: Introduction
> To: PARKINSN@xxxxxxxxxxxxxxxxxxxx
> 
> Hello,
> 
> I am a returning member to this listserve. I was first a member in 1997, 
> shortly after my diagnosis, and the members at that time were my first 
> support group. Now it is 12 years later and I have happily rediscovered the 
> group.
> 
> Since 1997, I have moved to Florida and then to Texas, where I now reside. My 
> neurologist is at LSU in Shreveport, LA, about 40 minutes from my home in 
> East Texas, and I am a member of a support group there.
> 
> I had DBS in 12/2006 in Dallas, TX, and it was truly a miracle for me. 
> 
> I look forward to hearing from and learning from current members.
> 
> Tom Clift
> 
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to: mailto:listserv@xxxxxxxxxxxxxxxxxxxx
> In the body of the message put: signoff parkinsn

----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:listserv@xxxxxxxxxxxxxxxxxxxx
In the body of the message put: signoff parkinsn