Re: DBS RESULTS -- AN INFORMAL SURVEY

[rayilynlee <rayilynlee@xxxxxxx>]

Ray
Rayilyn Brown
Past Director AZNPF
Arizona Chapter National Parkinson Foundation


--------------------------------------------------
From: "Les Combs" <lescombs@xxxxxxxxxxxxx>
Sent: Saturday, March 20, 2010 8:45 AM
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Subject: DBS RESULTS -- AN INFORMAL SURVEY

> I have Parkinson's disease, and I am considering DBS surgery. I have 
> searched the Internet to try to find some statistical data about the 
> probability of positive results versus negative results. I am coming to 
> you for information. This is an informal survey and is not intended to be 
> statistically significant. If I get enough responses, I will post an 
> e-mail on Parkinson listserv.
>
> If you have had DBS surgery, or your spouse has had it, or a person for 
> whom you provide caregiving has had it, please respond to the following 
> questions. Please provide only one response per patient please.
>
> When was the DBS surgery performed?  June and September 2003 (redo of one 
> side)
>
> Was the surgery bilateral? Yes
>
> Did the patient show substantial improvement? Yes
>
> Did the patient's Parkinson's symptoms become substantially worse? Yes, 
> but my tremors are still stopped.
>
> Were the patients Parkinson's symptoms substantially the same? No
>
> If you feel comfortable doing so, would you please provide me with the 
> name, phone number, and address of the doctor? Thomas Waltz, my 
> neurosurgeon at Scripps La Jolla CA died a couple of years ago.
>
> Please reply to this e-mail. And leave the subject line the same.
>
> Thank you for any help you can give me.  DBS NTs still are controlling my 
> tremors, but my voice has gotten worse.  after 7 years stiffness and poor 
> balance has increased greatly.  However, I  don't take any PD meds as they 
> never  helped except on first dose.
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to: 
> mailto:listserv@xxxxxxxxxxxxxxxxxxxx
> In the body of the message put: signoff parkinsn 

----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:listserv@xxxxxxxxxxxxxxxxxxxx
In the body of the message put: signoff parkinsn