Re: DBS RESULTS -- AN INFORMAL SURVEY

[Shekhar Nagarkar <snagarkar@xxxxxxx>]

I too would welcome  an opportunity to discuss  with you the results of you=
r surveyPlease include me in this discussion=2C As I have not had dbs even =
after 12 years of PD and my life is  not bad with good diet and exercise an=
d good medi  management. I dont know how long  I can keep it up so eventual=
ly i may need to go for DBS.My Neuro consultant does not believe I should h=
ave dbs. He does not believe the  down side is made known as we only hear o=
f successes andrarely about the cabbages. I dont know what to do. My qualit=
y of life is too good to risk DBS just now and I wonder if with the right m=
edication and supplements and good lifestyle management disciplines. I can =
continue to maintain a good quality of life at least for another few years =
and avoid the risk of being a statistic for DBs on the negative side.
BEst Wishes=20
Shekhar Nagarkar Age 62=2C diag 50=2C



> Date: Sun=2C 21 Mar 2010 12:32:20 +0500
> From: hbshaikh@xxxxxxxxx
> Subject: Re: DBS RESULTS -- AN INFORMAL SURVEY
> To: PARKINSN@xxxxxxxxxxxxxxxxxxxx
>=20
> would be interested in the results
> Best
> Haroon Basheer
> haroon.basheer@xxxxxxxxxxxxxxxxx
>=20
>=20
>=20
>=20
> On Sat=2C Mar 20=2C 2010 at 8:45 PM=2C Les Combs <lescombs@xxxxxxxxxxxxx>=
 wrote:
>=20
> > I have Parkinson's disease=2C and I am considering DBS surgery. I have
> > searched the Internet to try to find some statistical data about the
> > probability of positive results versus negative results. I am coming to=
 you
> > for information. This is an informal survey and is not intended to be
> > statistically significant. If I get enough responses=2C I will post an =
e-mail
> > on Parkinson listserv.
> >
> > If you have had DBS surgery=2C or your spouse has had it=2C or a person=
 for
> > whom you provide caregiving has had it=2C please respond to the followi=
ng
> > questions. Please provide only one response per patient please.
> >
> > When was the DBS surgery performed?
> >
> > Was the surgery bilateral?
> >
> > Did the patient show substantial improvement?
> >
> > Did the patient's Parkinson's symptoms become substantially worse?
> >
> > Were the patients Parkinson's symptoms substantially the same?
> >
> > If you feel comfortable doing so=2C would you please provide me with th=
e
> > name=2C phone number=2C and address of the doctor?
> >
> > Please reply to this e-mail. And leave the subject line the same.
> >
> > Thank you for any help you can give me.
> >
> > ----------------------------------------------------------------------
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> > In the body of the message put: signoff parkinsn
> >
>=20
> ----------------------------------------------------------------------
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