Re: GDNF letter writing campaign/MaryAnn

[Brightline <brightline@xxxxxxxxxxxxxxx>]

I Agree with Ray. But, I also do not trust any of the drugs approved by our
revered FDA! The whole pharmacy world is out for our money. And FDA doesn't
seem to be an exception. Look how long does it take to agree upon the
uselessness of sinemet. Still papers are published in favor of and against
L-dopa! Everybody seems to care about the money they can make or the so
called ethics!
    Raj
***********

----- Original Message -----
From: Rayilyn Brown <RayilynLee@xxxxxxx>
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Sent: Saturday, December 25, 2004 12:15 AM
Subject: Re: GDNF letter writing campaign/MaryAnn


> Mary Ann
> as a PWP my life has been ruined, a living death for 9 years, and I would
> take anything that would give me a moment's  relief.  There are no "safe"
drugs
> anyway, in my opinion.
>
> I hoped I would die when I had my DBS surgeries.  I know everyone
perceives
> their  situation differently, but PD is the worst incurable disease I have
ever
> had.  Ovarian cancer was a breeze compared to this.  Do you think I would
be
> afraid of what a drug could do to me after what PD has done?
>
> People in that study should have the right to decide for themselves and
they
> want that treatment.  This is kind of like denying marijuana to dying
cancer
> patients. Most approved PD drugs suck anyway with bad side effects.  Also,
the
> longer I live and talk to people with really serious medical problems the
more
>  I'm reminded that really very little is cured or helped except polio and
TB.
> Ray
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:listserv@xxxxxxxxxxxxxxxxxxxx
> In the body of the message put: signoff parkinsn

----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:listserv@xxxxxxxxxxxxxxxxxxxx
In the body of the message put: signoff parkinsn